Tag Archives: Fibromyalgia Awareness

Fibromyalgia Awareness Day – May 12, 2014

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Fibromyalgia – Make It Visible Photo Credit: National Fibromyalgia Association (NFA)

I am excited! In less than one day, it will be the beginning of a new month and also the time Fibromyalgia patients all over the world will celebrate Fibromyalgia Awareness Day May 12, 2014.

In honor of this auspicious day, we will not only celebrate on the 12th but the celebration will last all month. Please join us and come together to “make it visible” “make fibro visible”.

Share information, pictures, and inspirational stories. Wear purple. Attend empowering events, and make your voice heard on any and all social media platforms. Let your friends know on Twitter, Facebook, BlogHer, and any platform you are visible.

The National Fibromyalgia & Chronic Pain Association (NFMCPA) and National Fibromyalgia Association (NFA) have tons of information available on their website and Facebook page for Fibromyalgia patients as well as family, friends, and all who may be interested in learning more or becoming an active participant. They also have some cool Fibromyalgia apparel you can take advantage of. There are many events scheduled throughout the month of May, too many to list here. Please visit the NFMCPA and NFA website and for more information.

Additionally, I found a cool hashtag the NFA shared on its Facebook page and I would like to share with you in the hopes you share with others when you spread the word to increase awareness. #makefibrovisible

A-Day-Aware-for-homepage-2014Fibromyalgia Awareness Day is May 12, 2014.

Here’s to more pain-free days filled with laughter, joy, and praise!

In the meantime, thanks for stopping by. -JD

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From the desk of Karen Richards: Dr. Oz Show About Fibromyalgia – Tuesday, July 23

Fibromyalgia Awareness

Fibromyalgia Awareness (Photo credit: Kindreds Page)

The Dr. Oz Show, scheduled to be broadcast this Tuesday, July 23, 2013, is going to feature information about fibromyalgia.

The title of the program is “The Disease Doctors Miss Most: Fibromyalgia” and the description of the episode says, “Are you always exhausted and in constant pain? Learn about the latest treatments and discoveries that could heal you.”

You can watch a brief promotion video of the show here: Dr. Oz promo http://www.doctoroz.com/episode/disease-doctors-miss-most-fibromyalgia

I have my DVR set up to record the show and I’m looking forward to hearing what he has to say about fibromyalgia and potential treatments.

Karen Richards via http://www.healthcentral.com/chronic-pain/c/5949/161946/dr-fibromyalgia-tuesday

Please share! -JD

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Niagara Falls Lit Up for Fibromyalgia Awareness by Karen Lee Richards

By Karen Lee Richards, Health Guide Saturday, May 25, 2013

This year on the evening of May 12 – Awareness Day for several neuro-immune illnesses – Niagara Falls was lit up for 15 minutes each in the awareness colors of three of those illnesses: fibromyalgia, ME/CFS (chronic fatigue syndrome) and multiple chemical sensitivities.

If you weren’t able to see that event live on the Niagara Falls Webcam, here are the still shots I was able to capture.

Purple for Fibromyalgia Awareness:

Blue for ME/CFS Awareness:

Green for Multiple Chemical Sensitivities Awareness:

It was exciting to see this national landmark, treasured by both the U.S. and Canada, boldly displaying our awareness colors.

Niagara Falls Lit Up for Fibromyalgia Awareness
(www.Healthcentral.com)

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Fibromyalgia Awareness Day is Sunday May 12, 2013!

I couldn’t help but step outside of my comfort zone of what I normally post and share a “Save The Date” post to acknowledge a cause I am very passionate about to bring awareness.

We all know that Sunday May 12th is Mother’s Day but what some may not be aware of is it is also Fibromyalgia Awareness Day.

When I saw this photo taken from Fibromyalgia Awareness’s Facebook page, it struck me and its caption totally captured my full attention when I read these words, “Things are not as they seem. I may look great but right now even my hair & clothes hurt. Invisible, but Present.” I couldn’t help but share not only the photo but briefly share information regarding the day and the reason for the cause.

I took the liberty of posting an article we stumbled upon written by Karen Lee Richards, Co-founder of the National Fibromyalgia Assn. that I believe will be extremely helpful for those suffering with this condition. I also believe it will help to solidify my goal to promote awareness, attention, and involvement in light of this cause so that others may have the opportunity to participate in Awareness Day. Please see the excerpt I’ve included below from the following link: (http://www.healthcentral.com/chronic-pain/c/5949/160652/fibromyalgia-awareness ).

“Whether you’re one individual person who wants to make your voice heard, a large group sponsoring a city-wide walk to raise funds for FM research, or anything in between, the NFMCPA can provide you with a FREE Fibromyalgia Awareness Day event kit to help you accomplish your goal. For more information or to order an event kit, visit the NFMCPA’s Awareness Day 2013 Web page.”

Fibromyalgia Syndrome (FMS) is a condition that is greatly misunderstood and misdiagnosed. It is complex and has numerous symptoms associated with the condition. Commonly referred to as an “invisible disability” largely due to a wide range of symptoms that are not easily detected on the surface, there are up to 10 million Americans who suffer with this condition http://www.fmaware.org/PageServerc145.html. I am one of them.

Although it is recognized around the world, it is commonly ignored and in most cases many patients do not receive proper treatment or support from medical professionals, family and/or friends. As such, I believe it is imperative we come together as a nation to take this seriously by increasing efforts to raise awareness in the hopes of finding a solution.

Too often doctors choose to ignore or recognize this as a valid condition and will not support the fact that it even exist. However, FMS affects people of all ages, race, and sex. And sadly, many are in so much pain they feel like getting out of their own skin they don’t want to be in.

There is a tremendous amount of physical and psychological strain where many have lost jobs and have become disabled as a result of it. There are some who will experience depression and social isolation. The impact it has on one’s life can bring hopelessness, despair, and devastation. But there is still hope. We can make a difference.

If you or anyone you know have been diagnosed with Fibromyalgia, please understand you are not alone. Nor is it all in your head or you are “imagining things” even when your symptoms don’t make sense. It’s real. The symptoms do exist. I know. I am one of those people.

My hope is that one day the medical community comes to recognize and fully understand this terrible, debilitating condition in the hopes a cure may be found.

“Save the date” May 12, 2013. And please, feel free to share. Your support is greatly appreciated. Thanks! -JD

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