Tag Archives: Presidential Proclamation

September Pain Awareness Month – Day 10 of 30. I’m Still Fighting For A Presidential Proclamation

September is Pain Awareness Month--The month of September is Pain Awareness month and as many of you may already know since we are in the 10th day of September, it is a time where many across the nation will help raise awareness of issues surrounding the need for effective treatment for millions of Americans around the world who suffer with pain.

As a semi-silent pain advocate and one who is truly passionate about the cause of pain awareness, I try my best to do what I can when I can to make a difference. Before I was diagnosed with Fibromyalgia and a host of other conditions that cause me to suffer daily with chronic pain, I could not imagine what it would be like to be in pain indefinitely. Or knew of anyone who experienced what I find myself experiencing every day for over the past 10 years. Even so, I cannot imagine one individual that does not know someone who suffers with pain.

What I have learned throughout this pain journey, it does not discriminate. It can affect anyone at any given time without any warning. You never know when it can happen to you. And sadly, I find it is not until someone experiences pain at a level beyond comprehension that will last past infinity, they may never understand the significance of the need for effective treatment and care. It is my hope one day, new treatment and new research develops that will help other American pain sufferers find some form of normalcy and have a better quality of life as a result of their findings.

There are a number of organizations that offer information and resources to consider during the month of September. Please take a moment to see how you can get involved. It can be something as simple as calling a friend or love one you know who suffers with pain and letting them know they can count on you for support just by checking on them from time to time. Love and compassion can go a long way.

Lastly, you can visit websites of various pain organizations like U.S. Pain Foundation, National Fibromyalgia & Chronic Pain Association (NFMCPA), or Power of Pain to get involved with planned events and activities. And by all means don’t just get involved during the month of September but show your support throughout the year. You don’t know how much your support, no matter how big or small, can change a life.

As for me, I have been fighting for a first-ever Presidential proclamation naming September National Pain Awareness month for the past four years. I am still hopeful one day God will send a divine connection in answer to my prayer and the proclamation will be signed. I won’t give up. I will continue to fight until a proclamation is received.

As such, I created a video with the help of my family in 2011 titled, If There Was Less Pain, I Could…. in response to a campaign held by the former American Pain Foundation (APF) organization. The video, which can be found on YouTube, represents my message to President Obama detailing, in a poem, what my world would be like and what I would do, if I could, if there was less pain.

The door in the video symbolizes people like myself who hide behind the mask of pain. It speaks volumes of what we have come to know as the “hidden epidemic of pain” or the “invisible disability” no one knows about or wants to get to know about. Although you can see the door, you can’t see the person behind the door, longing waiting to be free; free to be ME. Please feel free to check out my video when you get a chance.

In the meantime and in between time, if you haven’t done so already, I urge you to become a part of and show your support for the cause and help millions like myself raise awareness. Join me and help spread awareness and support my efforts to secure a first-ever Presidential proclamation by sharing my YouTube link as well as my blog link on Twitter, Facebook, YouTube, Instagram, and any other social media outlet. Thanks for your support.

Let’s make this one of the best Pain Awareness months ever. Show your support. Wear PURPLE!

Be blessed! – JD

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I Won’t Give Up…Still Fighting for A Presidential Proclamation naming Every September National Pain Awareness Month!

wpid-storageemulated0DCIMCamera2014-01-25-16.56.44.jpg.jpgLast month I came across a post on Twitter from America Tonight asking the public to submit a request with the number one thing we wanted President Obama to do, noting responses may possibly air on their show the day before the State of the Union Address was scheduled to air.

I reluctantly had my daughter send an email to America Tonight’s Al Jazeera with my answer that stated, “#DearPOTUS, The number one thing I want you to do for all chronic pain sufferers across America is sign the first-ever Presidential proclamation naming every September National Pain Awareness Month, please and thank you Mr President Barack Obama.”

To my surprise I received an email from DearPotus@aljazeera.net saying, “This is great! Could you write that on a poster & take a photo of yourself holding it, so we could use it in our broadcast?” I was elated! I immediately responded asking when was the deadline and advised them I would need time since I had to have my daughter get a poster, write it up, and take a photo of me. They said I had until that following Monday before the SOTU address. So I did just that and submitted the photo. America Tonight immediately posted my picture on Twitter along with several hundred or thousand of entries and then noted “the best would appear in tomorrow’s broadcast.” I was still hopeful.

On Monday, January 27, 2014 I watched the America Tonight show to see if my photo made it to their broadcast but sadly it didn’t. I was still grateful and thankful I got the chance to add my voice even if it was not in the way I had hoped. I truly believe God has a plan and no matter how it may work out according to man, it will work out just as God plan.

I am still hopeful though because it will not stop me from continuing in my fight to secure a Presidential proclamation for a cause I am passionate about. And this is not the first time I’ve been denied. In the past four years I have made several contacts by phone, letters, and other avenues to the President’s office as well as the senator’s office advocating, to no avail. I haven’t received any answers. But I am declaring victory! God is in control. Pain sufferers unite. We will have the victory!

I learned I should take another route so I did a little research and ran across a process I should try out. Contact officials in my state and follow the government chain of command starting with the mayor, governor, and senators. I am hoping this in turn will increase my chance of having someone review and honor my request and ultimately it will become a reality in my life and the life of chronic pain sufferers everywhere, should President Obama review my request and sign the proclamation.

My family has agreed to help with sending requests to the mayor, governor, and senators of my state by mid-March and then will submit a final third written request to President Obama. One day, this too shall pass.

Please keep me in your prayers, join me, and continue in your support to aid in the fight to bring awareness to the “hidden” epidemic of pain by spreading the word. Pain is not just an individual or local problem but a “national healthcare crisis” that deserves proper recognition to increase efforts and aid healthcare professionals to take the right approach towards promoting effective treatment for chronic pain sufferers across the nation.Thank you!

I won’t give up…Still fighting for a Presidential Proclamation naming every September National Pain Awareness Month!

Be blessed!-JD

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In Support of September Pain Awareness Month

In support of a cause I am truly passionate about for those who suffer with ongoing chronic pain, as a pain advocate, I decided to dedicate this post today to lend my voice in honor of September Pain Awareness Month.

Having lived with chronic pain for the past eleven years and being diagnosed with various conditions, I became an  advocate with various chronic pain association organizations to help raise awareness. Although my efforts are limited due to limitations and challenges I face, I do what I can when I can to make a difference.

When I became diagnosed with Fibromyalgia in 2009, with the help of my family,  the first step in my journey  as a pain advocate began with submission of my story “Joy” to the APF Action Network. The story can also be read at http://action.painfoundation.org/site/PageNavigator/Voices_of_Pain.

To raise awareness about the need for effective pain care in response to the American Pain Foundation’s  (APF) “If I Lived in a World with Less Pain, I Could…” campaign to SECURE A FIRST-EVER PRESIDENTIAL PROCLAMATION OFFICIALLY NAMING EVERY SEPTEMBER NATIONAL PAIN AWARENESS MONTH, my family helped create this video “If I Lived in a World with Less Pain, I Could…” to share my voice as well as spread the word to bring awareness to what I believe is such an important issue in the lives of those who live with pain.

The video represents a poem of my message to PRESIDENT OBAMA of what MY WORLD WITH LESS PAIN would be like. It gives me an opportunity to make a difference in the lives of others as I work to bring national awareness to the “hidden” epidemic of pain (APF) so that those who suffer with pain will have a right to effective care and treatment; because “pain” is not just an individual or local problem. It is a national healthcare crisis. It does not only affect pain sufferers but it affects families, friends, associates and anyone who is connected to its world. Even though it may not directly affect every individual, the physical, financial and emotional affects can be devastating to the pain sufferer and the families of those who will ultimately suffer. But with your help, we all can make a difference.

APF ceased operation last year and is no longer active, but I am still campaigning and fighting for a presidential proclamation.

Please join me in support of this cause and spread the word DURING THE MONTH OF SEPTEMBER or UNTIL A PRESIDENTIAL PROCLAMATION IS SECURED by asking others to spread the word on Twitter, Facebook, Tumblr, or any other social media. Your support would be greatly appreciated! -JD

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