Tag Archives: September Pain Awareness Month

In Honor of September Pain Awareness Month: “If There Was Less Pain, I Would….If I Could”

I am Joy and I want the world to know,
what I would do if this were so.

If I lived in a world with less pain, this is what you would see.
A world filled with less struggles and strain, aching to be free.

I would be a voice that does not go unheard.
But instead be one of distinction to serve,
a community of people with better places to go
in their provision of care that exceeds “the pain world” we’ve come to know.

Pain as it is, with treatment that works.
Not pushed or stereotyped merely because we “irk”,
the professional that thinks we all are the same,
prescribing a drug that has the same name,
even if our conditions are in different range.

If I were this person this is how it would be,
you could hear my voice but you can’t see me.
Because if I was in less pain I would be free.

Free to live with less struggles and despair,
but with a greater hope to overcome obstacles I can bear.

Free to speak without feeling ashamed
of the world I now exist in with the devastation of pain.

Free to choose a doctor that will openly listen to me
and not place me in the same category.

Free to live out the goals I so desire,
without constantly feeling sick, weak, or tired.

Free to be the person I was created to be,
to live out the purpose that was pre-destined for me.

With more strength than I now have that would carry me through,
a life filled with courage and hope anew.

If I lived in a world with less pain “I” would be,
the person behind the door you cannot see.
The person longing, waiting…to be free.

Free to be Joy. Free to be me!

by Joy Darden

To raise awareness about the need for effective pain care in response to the former American Pain Foundation’s (APF) If I Lived in a World with Less Pain, I Could…. campaign to SECURE A FIRST-EVER PRESIDENTIAL PROCLAMATION OFFICIALLY NAMING EVERY SEPTEMBER NATIONAL PAIN AWARENESS MONTH, my family helped create this video “If I Lived in a World with Less Pain, I Could…” to share my voice as well as spread the word to bring awareness to what I believe is such an important issue in the lives of those who live with pain.

The video represents my message to PRESIDENT OBAMA what MY WORLD WITH LESS PAIN would be like and what I Would Do If I Could…if I were not in pain. It gives me an opportunity to make a difference in the lives of others as I work to bring national awareness to the “hidden” epidemic of pain (APF) so that those who suffer with pain will have a right to effective care and treatment; because “pain” is not just an individual or local problem. It is a national healthcare crisis. It does not only affect pain sufferers but it affects families, friends, associates and anyone who is connected to its world. Even though it may not directly affect every individual, the physical, financial and emotional affects can be devastating to the pain sufferer and the families of those who will ultimately suffer. But with your help, we all can make a difference.

Please join me in support of this cause and spread the word DURING THE MONTH OF SEPTEMBER or UNTIL A PRESIDENTIAL PROCLAMATION IS SECURED by asking others to spread the word on Twitter, Facebook, Google+ Instagram, Periscope, Pinterest, or any other social media outlet. Your support would be greatly appreciated! Thank you.

Be blessed! – JD

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September Pain Awareness Month – Day 10 of 30. I’m Still Fighting For A Presidential Proclamation

September is Pain Awareness Month--The month of September is Pain Awareness month and as many of you may already know since we are in the 10th day of September, it is a time where many across the nation will help raise awareness of issues surrounding the need for effective treatment for millions of Americans around the world who suffer with pain.

As a semi-silent pain advocate and one who is truly passionate about the cause of pain awareness, I try my best to do what I can when I can to make a difference. Before I was diagnosed with Fibromyalgia and a host of other conditions that cause me to suffer daily with chronic pain, I could not imagine what it would be like to be in pain indefinitely. Or knew of anyone who experienced what I find myself experiencing every day for over the past 10 years. Even so, I cannot imagine one individual that does not know someone who suffers with pain.

What I have learned throughout this pain journey, it does not discriminate. It can affect anyone at any given time without any warning. You never know when it can happen to you. And sadly, I find it is not until someone experiences pain at a level beyond comprehension that will last past infinity, they may never understand the significance of the need for effective treatment and care. It is my hope one day, new treatment and new research develops that will help other American pain sufferers find some form of normalcy and have a better quality of life as a result of their findings.

There are a number of organizations that offer information and resources to consider during the month of September. Please take a moment to see how you can get involved. It can be something as simple as calling a friend or love one you know who suffers with pain and letting them know they can count on you for support just by checking on them from time to time. Love and compassion can go a long way.

Lastly, you can visit websites of various pain organizations like U.S. Pain Foundation, National Fibromyalgia & Chronic Pain Association (NFMCPA), or Power of Pain to get involved with planned events and activities. And by all means don’t just get involved during the month of September but show your support throughout the year. You don’t know how much your support, no matter how big or small, can change a life.

As for me, I have been fighting for a first-ever Presidential proclamation naming September National Pain Awareness month for the past four years. I am still hopeful one day God will send a divine connection in answer to my prayer and the proclamation will be signed. I won’t give up. I will continue to fight until a proclamation is received.

As such, I created a video with the help of my family in 2011 titled, If There Was Less Pain, I Could…. in response to a campaign held by the former American Pain Foundation (APF) organization. The video, which can be found on YouTube, represents my message to President Obama detailing, in a poem, what my world would be like and what I would do, if I could, if there was less pain.

The door in the video symbolizes people like myself who hide behind the mask of pain. It speaks volumes of what we have come to know as the “hidden epidemic of pain” or the “invisible disability” no one knows about or wants to get to know about. Although you can see the door, you can’t see the person behind the door, longing waiting to be free; free to be ME. Please feel free to check out my video when you get a chance.

In the meantime and in between time, if you haven’t done so already, I urge you to become a part of and show your support for the cause and help millions like myself raise awareness. Join me and help spread awareness and support my efforts to secure a first-ever Presidential proclamation by sharing my YouTube link as well as my blog link on Twitter, Facebook, YouTube, Instagram, and any other social media outlet. Thanks for your support.

Let’s make this one of the best Pain Awareness months ever. Show your support. Wear PURPLE!

Be blessed! – JD

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September Pain Awareness Month 2014 – Let’s Go All Out to Make It One of the Best Ever!

wpid-textgram_1409547189.pngTomorrow many across the nation will participate in September Pain Awareness Month. As a chronic pain sufferer and Fibromyalgia patient, not only the month of September but every day is an opportunity for me to spread awareness and increase efforts to make the “hidden”epidemic of pain visible. I work daily to be one voice.

Every September, I make a special effort to share my video and my voice in support of this cause as well as continue my fight to secure a first-ever Presidential Proclamation naming every September National Pain Awareness Month. I may not have ability to contribute as much as I’d like given my health, but I never miss an opportunity, when I am able, to make a difference.

While September is considered a critical month  to promote education and awareness, I never cease and will continue in my efforts to raise pain awareness. As such, I thought it would be fitting to share an awesome newsletter I received the other day from Paul Gileno, Founder and President of U.S. Pain Foundation filled with great information and posed a very interesting question, of which I couldn’t help but share the newsletter and pose the same question to you: “September is Pain Awareness Month: What Does that Mean?” Please take a moment to read over the information below and let me know your thoughts.

In the words of Mr. Gileno, I ask that you join me in the fight to increase awareness and “Let’s make the 2014 September Pain Awareness Month the strongest one to date.” Join me, starting tomorrow to make it one of the strongest pain advocacy awareness months ever that will change lives. Thank you!

Be blessed! -JD

Pain Awareness Month Edition                                September 2014

To my fellow Pain Warriors and Friends: September is nearly here meaning another National Pain Awareness Month will soon be underway. This is such an important month for anyone living with pain. For thirty days, public attention will be drawn to the hardships, struggles and trials of those suffering. Our Ambassadors and other organizations strive to work more closely together to promote pain education and awareness. We work together to unite the pain community while additionally raising awareness about how pain affects us all. Pain Awareness Month essentially creates hope and compassion for those with pain, reminding them they are heard, validated and never alone.

Yet what happens on the first of October? While those invested in the epidemic of pain continue their missions to advocate, educate and empower, others sometimes lose interest in the cause. A new issue takes center media spotlight, which ends the action piece that many of us were looking to follow the progress of September from happening.

This is where YOU – the pain warrior, care champion, supportive ally – play a role. It is up to you to continue voicing your stories, sharing your worries and breaking down barriers. September gives us the boost we need to bring our concerns to the forefront. But we have to take that next step. We have to push for the funding, the research, the education and the legislative changes we wish to see. It might seem like a tedious task, but every September I feel US Pain Foundationmore optimistic that our collective voice is making an impact. That we are somehow getting closer to that moment when the topic of pain care is at the forefront of health care, and pain is not looked upon with a stigma but as a real disease.

I am thankful to the coalition of organizations who created Pain Awareness Month fourteen years ago. They had a vision to eradicate the under-treatment of pain and shed light on 100 million Americans living with chronic pain. Together, we are making headway but there is still such room for growth. That is why we need to keep pushing the envelope.

We must come together as a community and work for the common good of people with pain.

To all those out there who feel isolated and alone, remember there are many who understand your plights and are working to create your better tomorrow. It is our goal for everyone to have access to proper pain care, to have the ability to see the doctors they need, to receive appropriate treatments, and most importantly to walk this journey with you.

This month, and every other month, U.S. Pain is dedicated to lessening the suffering of pain and to help guide you to a hopeful and fulfilling life. We are in the process of revamping our current website. The updated site will hold more information, tools and resources to educate, empower and advocate for the pain community. Our goal is for it to go ‘live’ this fall. We are also working on a U.S. Pain app as well as a whole host of events, seminars and educational days for the upcoming fall and winter of 2015. It is important to us to expand our programs, and to do this, we continue to work with many community partners to have these programs for you.

Let’s make the 2014 September Pain Awareness Month the strongest one to date. Together, let’s shift perceptions, start that positive dialogue we want to see and finally obtain the answers we need for better medical advancements the field of pain care.

You are all pain warriors, and each of you inspires me. Thank you for being a part of this journey. Day by day, we are making small steps toward victory.

Wishing you all a low-pain and high-spirits day,

Paul Gileno

Founder & President, U.S. Pain Foundation

US Pain Foundation2

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In Support of September Pain Awareness Month

In support of a cause I am truly passionate about for those who suffer with ongoing chronic pain, as a pain advocate, I decided to dedicate this post today to lend my voice in honor of September Pain Awareness Month.

Having lived with chronic pain for the past eleven years and being diagnosed with various conditions, I became an  advocate with various chronic pain association organizations to help raise awareness. Although my efforts are limited due to limitations and challenges I face, I do what I can when I can to make a difference.

When I became diagnosed with Fibromyalgia in 2009, with the help of my family,  the first step in my journey  as a pain advocate began with submission of my story “Joy” to the APF Action Network. The story can also be read at http://action.painfoundation.org/site/PageNavigator/Voices_of_Pain.

To raise awareness about the need for effective pain care in response to the American Pain Foundation’s  (APF) “If I Lived in a World with Less Pain, I Could…” campaign to SECURE A FIRST-EVER PRESIDENTIAL PROCLAMATION OFFICIALLY NAMING EVERY SEPTEMBER NATIONAL PAIN AWARENESS MONTH, my family helped create this video “If I Lived in a World with Less Pain, I Could…” to share my voice as well as spread the word to bring awareness to what I believe is such an important issue in the lives of those who live with pain.

The video represents a poem of my message to PRESIDENT OBAMA of what MY WORLD WITH LESS PAIN would be like. It gives me an opportunity to make a difference in the lives of others as I work to bring national awareness to the “hidden” epidemic of pain (APF) so that those who suffer with pain will have a right to effective care and treatment; because “pain” is not just an individual or local problem. It is a national healthcare crisis. It does not only affect pain sufferers but it affects families, friends, associates and anyone who is connected to its world. Even though it may not directly affect every individual, the physical, financial and emotional affects can be devastating to the pain sufferer and the families of those who will ultimately suffer. But with your help, we all can make a difference.

APF ceased operation last year and is no longer active, but I am still campaigning and fighting for a presidential proclamation.

Please join me in support of this cause and spread the word DURING THE MONTH OF SEPTEMBER or UNTIL A PRESIDENTIAL PROCLAMATION IS SECURED by asking others to spread the word on Twitter, Facebook, Tumblr, or any other social media. Your support would be greatly appreciated! -JD

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